News

FDA Approves Oral Film for ALS Treatment

As ALS progresses, nerve cells in the brain and spinal cord are affected, leading to atrophy of the muscles, impaired speech, difficulty swallowing, and breathing problems. Riluzole is an oral formulation that...
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Molecular Handcuffs Offer Possible Solution for Lowering HD Protein

Last week, a study was published reporting a possible new way to lower mutant huntingtin levels - the protein produced by the Huntington's Disease gene. Read more here: https://en.hdbuzz.net/276?fbclid=IwAR2AAwr6Qzcg0uykvGM3pxP82HAr2q9JJBYBFn13EX4YNmnywMY2WLQ11wc
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UniQure Screens HD Patients for Gene Therapy Trial

UniQure, a Netherlands-based company, has started to screen Huntington's disease patients for its gene therapy trial, set to begin in late 2019 or early 2020.
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Reldesemtiv May Reduce Functional Decline in Fast Progressing ALS

In recent clinical trials, the experimental treatment reldesemtiv has been shown to reduce functional deterioration in patients with fast progressing ALS.
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Want to Slow Down Your ALS? Try Smiling!

According to a study of 224 ALS patients, participants who had good emotional well-being experienced a slower progression of the neurodegenerative disease.
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Optimizing the ALS Patient's Diet

Proper diet and exercise are critical for maintaining a healthy body weight, metabolism, and nutrition. However, hypermetabolism and weight loss are common side effects amongst ALS patients. When designing meal plans for individuals...
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SITRIN NEUROCARE HOSTS PREMIERE PARTY FOR "ALS & HD: YOU'VE GOT A FRIEND IN ME"

On Friday May 3, Sitrin NeuroCare hit the red carpet for a star-studded event. The specialty program premiered ALS & HD: You’ve Got a Friend in Me, a new music video...
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Scientists Uncover ALS Genetic Cause Mystery

About 35% of ALS cases are associated with mutations in the gene C9orf72, making it the most common genetic cause of ALS.
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Proteins Show Promise as Treatment for Huntington’s Disease

A protein that can specifically bind to mutated forms of huntingtin and prevent its production may represent a new strategy to attack Huntington’s Disease.
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Investigational Therapy CuATSM May Slow ALS Progression

The investigational therapy, CuATSM, has been found to possibly slow ALS disease progression and improve respiratory and cognitive function of patients.
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