News
For the First Time, Scientists Use Gene-Editing Tool to Edit Inside a Person
Scientists at the Casey Eye Institute in Portland, OR have injected a harmless virus containing CRISPR gene-editing instructions inside the retinal cells of a patient with a rare form of...
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Bloom Science receives grant to develop ALS therapy
Biopharmaceutical company, Bloom Science, has received a $500,000 grant from The ALS Association to develop microbiota-based therapies for ALS.
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Injection Of Virus-Delivered Gene Silencer Blocks ALS Degeneration, Saves Motor Function
A new approach is being researched involving injecting shRNA, an artificial RNA molecule, into adult mice with amyotrophic lateral sclerosis (ALS).
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FDA Approves Oral Film for ALS Treatment
As ALS progresses, nerve cells in the brain and spinal cord are affected, leading to atrophy of the muscles, impaired speech, difficulty swallowing, and breathing problems. Riluzole is an oral formulation that...
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Molecular Handcuffs Offer Possible Solution for Lowering HD Protein
Last week, a study was published reporting a possible new way to lower mutant huntingtin levels - the protein produced by the Huntington's Disease gene. Read more here: https://en.hdbuzz.net/276?fbclid=IwAR2AAwr6Qzcg0uykvGM3pxP82HAr2q9JJBYBFn13EX4YNmnywMY2WLQ11wc
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UniQure Screens HD Patients for Gene Therapy Trial
UniQure, a Netherlands-based company, has started to screen Huntington's disease patients for its gene therapy trial, set to begin in late 2019 or early 2020.
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Reldesemtiv May Reduce Functional Decline in Fast Progressing ALS
In recent clinical trials, the experimental treatment reldesemtiv has been shown to reduce functional deterioration in patients with fast progressing ALS.
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Want to Slow Down Your ALS? Try Smiling!
According to a study of 224 ALS patients, participants who had good emotional well-being experienced a slower progression of the neurodegenerative disease.
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Optimizing the ALS Patient's Diet
Proper diet and exercise are critical for maintaining a healthy body weight, metabolism, and nutrition. However, hypermetabolism and weight loss are common side effects amongst ALS patients. When designing meal plans for individuals...
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SITRIN NEUROCARE HOSTS PREMIERE PARTY FOR "ALS & HD: YOU'VE GOT A FRIEND IN ME"
On Friday May 3, Sitrin NeuroCare hit the red carpet for a star-studded event. The specialty program premiered ALS & HD: You’ve Got a Friend in Me, a new music video...
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